Dear Sister

I listened to a message you had left that sunny September day in 2023, letting me know you were in the hospital – ‘doing okay,’ although you said you were feeling very weak.

It’s hard to listen to now because you’re gone. It was just three months from your diagnosis to your death. As we talked during those months, you said that it had been a couple of years that things were starting to not feel right. You said you were tired all the time, and you couldn’t get to your doctor, and when you finally did, he minimized what was happening. Unfortunately, you weren’t someone who would demand being adequately treated.

By the time they had ordered tests when you had called me from the hospital, it was already basically too late (although no one could know that in the moment).

But I think you did know. I think that’s why you had me take you home that night. I’m sure you were terrified, and you were trying to run from it. I understand it now in a way that I didn’t before.

I’m so sorry that we never got back to the kind of friendship we had in our twenties. I don’t really know what happened, but maybe it was just time moving on and life shaping us.

I hope you know that I always loved you, and always wished that we could be friends again. I know that you loved me, but I didn’t feel like you liked me very much, and I felt hurt and defensive.

If there’s another place where I’ll see you again, I hope that we’re in our best selves with each other. But I’ll be glad to see you no matter what.

I’m also glad I saved your message – I’ll take the bitter to have the sweet.

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© seekingsearchingmeaning (aka Hermionejh), Making A Way Blog, 2010 – current

No Time

My oldest sister and I went to Rhode Island today to meet with my deceased sister’s tax prep guy who seemed like a lovely, caring person.

Our sister had been using his service for 29 years. 29 years! I don’t think I’ve used any kind of service for that long.

He told us that they used to chat while he did her taxes, and she would talk to him about her nursing schooling, and he would tell her about his love of all things Germany – especially Munich and Oktoberfest.

We all got teary-eyed over our departed sister.

Her house sold two days ago, and while her partner bought the house, it’s not the same. She’s gone. It was her house. Many of her things are still in it, but she’s gone.

I can’t conjure her except in memories, and maybe someday they won’t be as sad and depressing.

I can’t sing music we both enjoyed without sadness and sometimes weeping. I can’t talk about things that remind me of her, and there will never be another family beach day that she attends, or time to just spend with her – because no matter how awful she could be to me sometimes – she also just let me be wherever I was most of the time.

I don’t know what happened the last several years, but she became less happy, and less happy meant me not being treated well.

I think part of me understood that she was damaged. She didn’t want to be a jerk, but trying to make me feel bad made her feel slightly better. I understood it as our shared trauma. She learned differently. She would fight and I would flight/freeze. I was the youngest sister and learned to never mistake who was in the one-up position. Having an oldest sister who liked me helped moderate our other sister’s behavior toward me. She wasn’t top dog, but she was more top dog than me.

She told me she wanted to be a better sister. I saw her struggle with her inner world. I watched her change in ways she didn’t like, but the work to be different was a foreign language she couldn’t invest in.

We had a mutual friend from our early teens and they grew closer while they seemed to shut me out.

It was one of the most painful things I’ve ever dealt with. I honestly didn’t understand what happened, but I had to learn to accept it. Another mutual friend told me it was because they lived mostly on the surface and I had the unfortunate bent of wanting more dimension in my friendships. I also remembered the past more vividly than they did, so even if it wasn’t shutting me out, exactly, it was still a shock. I’m still shook thinking about it, but I’m adjusting and adapting, and doing my best to move on.

I guess that’s growing up. Those who I thought were my tribe are not. Maybe they once were, but that was then, this is now – and she’s gone. There’s no more chance at being accepted into the tribe – and why would I want to belong to a tribe that doesn’t want me to belong?

Still, my oldest sister and I, and my deceased sister’s partner, were with her the last days of her life. We did the best we could. She knew we loved her, and she told us she loved us.

It’s not easy to die. It’s not easy to leave a life in the middle of it. I think it’s easier to go quickly with no time to reflect on the fact of life’s end.

But we’re all dying. We’re also living. Living is what this place is for, and one day, sooner than I know, my turn to go will come.

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© seekingsearchingmeaning (aka Hermionejh), Making A Way Blog, 2010 – current

She Was Here

I pick up a paper from the growing stack of papers, and sympathy cards scattered here and there on the table, and I put it back down. I seem to walk in circles – doing mindless tasks, and chores – but nothing that requires real focus because I can’t seem to get myself together lately.

I’m supposed to be writing her obituary, but I can’t. It nauseates me to think of it – like maybe I’m making it real? I don’t think that’s really it. Maybe it’s that I have to face all that her passing means.

Any chance of a closer relationship is gone. While we both lived there was the possibility.

What is an obituary anyway? So much is left out. It’s the highlights, the best of them.

We don’t talk about the trauma much, if at all – or the pain and lingering hurt. That’s for me to work out alone, but it makes the writing seem disingenuous.

She was this, and that. She did these things, and then she left.

She left in the middle-ish of her life, and didn’t want to go – but not many of us do, regardless of our age.

She had a small life that she enjoyed, and she worked hard.

She didn’t know that she was getting sick, or that once she got sick it would be two & a half months of progressive hell with the hope that she’d regain function that never happened.

Her partner is devastated – shell-shocked really – and just a shadow in his own life now. Work is what saves him from the gaping hole of grief.

Her chair sits empty – her belongings mostly gone. How quickly physical traces got erased.

Do I want a shrine to her? Don’t we all deserve a shrine? We lived, dammit! WE WERE HERE.

I see my favorite picture of her in my mind’s eye. She is standing on a hill, maybe, with an Aruban breeze whipping her long copper red hair into her brightly laughing face. The beaming sun brings the feeling of warmth and being fully alive into that moment she was captured mid-laughter.

That was one of the happiest periods in her life. That’s when we were friends & I got to enjoy her company – her sense of adventure and be part of her strong, independent and earthy existence. She was fearless and exuberant. Her life was filled with activity: camping, canoeing, sunbathing, swimming, singing, dancing, and laughing.

But life moves on. She was better at letting go than I was. She went to nursing school, and finally got her bachelor’s degree focusing on diabetes education where she began a career.

She liked her house and her garden – so many things she did on her own.

She was good to my son, her nephew.

Time took away her sense of fun – or maybe that was what she thought maturity was.

Maybe we all figure out what’s comfortable for us, or what we’re willing to accept. Or maybe time just goes by regardless of what we’d like.

She was important to me. She was family. She showed up and made a point to have at least four gatherings a year.

I wished she had been kinder to me as time went on, but I didn’t recognize that maybe she was changing in ways that she didn’t understand herself.

Accepting how she changed was hard for me. I’ve changed too. Time changes us all whether we know it or not.

We have an essential self that gets buried under life’s burdens, but we can still shine through.

I will remember that laughing young woman, grateful for all she gave me as her sister, and hoping that she remembered the goodness we once shared.

I love you Twyla. I hope you’re in your happiest self, sparkling among the stars.

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© seekingsearchingmeaning (aka Hermionejh), Making A Way Blog, 2010 – current

Strangeness

It’s this inbetween-land. Everything looks strange and inaccessible, but it’s also all familiar and available. I think I’m not liking this aspect of human-being.

Anger has saved me lately. It’s raw and vivid, and takes me out of any other feelings. Its also cold and callous. I see pain around me, even within me, and I’m not moved – except sometimes I am.

I will come back to balance & center again – but I’ve been trying to drink it away, and all I get is 15 or 20 minutes of relief, but hours or a day of feeling sick.

It’s not a good trade off. I feel better when I don’t drink, plus I can’t afford it anyway.
I can’t sustain anger either. I have to let the grief be there. I don’t want to talk, I have to walk about and let all of it be there.

So I’ll leave the booze to those it won’t try to kill, and I’ll keep putting one foot in front of the other.

My sister got very sick, fairly quickly – even if it had been signalling its arrival for several years. It was hard to see what was happening until the worst happened.

Systemic scleroderma is a lot like cancer in remaining a general malaise for a long time before it erupts. Some get a milder version they can live with, but my sister got the worst version. It was relentless.

Her death was a relief for her because there was no out. She wasn’t traumatized at the end, her breathing got fast for a few minutes and then just stopped. We did all we could & in the hours before her passing we kept her comfortable, and kept telling her we loved her.

Don’t make any major decisions for a year wiser people say, but all I want to do is run. I want to move to another country or another planet. I want to not be at all anymore, and not because I’m grieving over my sister’s relatively early exit, but because there will be more.

It’s never going to end – it was just much less of it earlier in my life.

Maybe whatever comes next will be amazing and I’ll be so happy once I’m there, but as I am still earthbound, I have to deal with being human. If I hurt myself through carelessness, I’ll just have those consequences on top of getting old or sick.

If I’m going to be here, it’s important to me to be in the best shape I can to live the rest of my time well, and I will deal with my death when it comes.

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© seekingsearchingmeaning (aka Hermionejh), Making A Way Blog, 2010 – current

Sisters Forever

So, what is there to do, after all, when the hard news comes that you knew was coming?

You also knew, and held out hope, that sometimes circumstances come together to change momentum’s direction, or change a person’s mind and will to continue on.

Hope was needed, but now it belongs back in its box.

The story’s end is known – only the timeline alters.

There is no changing what is happening, but I don’t have to hold my breath, or keep anxiety in my heart or mind. It won’t help, and it’s not compassion or acceptance.

What if she were going to a privately held party on a remote tropical island where everything is as you wish? I would feel envious instead of anxious, but I would be happy for her.

I wouldn’t try to delay her flight, or talk her out of going based on my fear.

She’s got her party hat all picked out.

Her dress is floral and flattering, her sandals and bag match, and her heart becomes light and joyful upon her arrival.

Maybe the flight was dreadful and terrifying, but the warm breezes embrace her as she disembarks. The distress of the difficult journey falls away as she gazes upon white sand, an azure ocean, and a forget-me-not blue sky.

Relatives and friends from her entire life are there to greet her, and celebrate her arrival.

She pauses before walking off because she hears crying in the distance – tears for her, and she looks for a way to ease them.

She sees an oyster shell at her feet and picks it up. She somehow knows that if she blows on it, the breeze will whisk it away into the ethers and it will soon gently fall at those sad ones’ feet.

They can know that she is now safe, and happy, and free.

All is well, and as it should be.

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© seekingsearchingmeaning (aka Hermionejh), Making A Way Blog, 2010 – current

That Was Then, What Is Now?

It’s ok if you go, but it’s not ok. Or maybe I don’t know how I feel.

It’s so complicated. This life. Our trauma. You were so mean to me growing up and then we became friendly and we had so much drug-fueled fun together.

You were fierce and brash – so full of your youth and life.

You laughed a lot then, and danced and sang and played.

Life slowly chipped away at you and you reverted to being mean to me again.

I didn’t understand what happened. I remained who I always was. I’d glimpse your old self now and then, and my hope for friendship’s return brightened, only to be dashed with your harsh words. Your inner bully grew, even though I sensed the conflict within you, the desire to be free again.

‘Nothing is wrong with me,’ you would declare. ‘I’m not crazy,’ you spat out from your deeply wounded, deeply guarded self.

No, you’re not crazy. You’re wounded in a way it takes professional help to navigate, but that’s only for weak people like me, right?

I got to be the scapegoated one. You got to see me as more fucked up than you because I couldn’t contain my trauma. The irony is, neither could you – not really.

We were brutalized. We suffered PTSS before it was given a name.

But you pulled into yourself and declared war on the world – and pushed me out.

I never left. I still loved you & waited for the day you might remember the joy we had through the pain that was easier to ignore in our exuberant youth.

I hate seeing you stripped of your vitality and strength. You’re still trying to bully your way through this illness that does not compromise or get worn down. It just keeps punching.

Getting well means accepting that you’re not in charge, and it’s calling the shots. Your chance is in letting go and finding that resilient affirmation to live.

You’re scared and so am I – and I’m still on your side through it all.

It’s ok to go, but I’ll be sad we never got back to the goodness we once had. I’m accepting that it belonged to back then, not now.

I lost you long ago, but keep holding out hope in the face of all evidence to the contrary.

I’m sorry. I forgive you, please forgive me. I love you.

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© seekingsearchingmeaning (aka Hermionejh), Making A Way Blog, 2010 – current